KAD JE PRIMIJETE SVI OVU BOLEST KRIJU JER IH JE STID: A ona nastaje ispod PAZUHA!

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KAD JE PRIMIJETE SVI OVU BOLEST KRIJU JER IH JE STID: A ona nastaje ispod PAZUHA!
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Najčešće se javlja nakon puberteta, ali i poslije 21. godine života, a tri puta češće javlja se kod žena. A najveći problem je u tome što se ljudi koji pate od ovog stanja stide da o njemu pričaju.
 

Upravo o tome svjedoči i priča ove žene koja je riješila da o svom problemu progovori javno.

''Prije svega bih da napomenem da, dok ovo kucam, pazusi me toliko svrbe i gore da mi dođe da vrištim. Danas je jedan od lošijih dana, i da postoji način da prosto odsiječem sebi pazuhe, vjerujte mi da bih to uradila.

I potpuno sam svesna činjenice da su mi pazusi odvratni. To mi je potpuno jasno - ogromni su, crveni, i puni otečenih čireva. Znam da na njima postoje otvorene rane koje bukvalno zjape. I znam da nekad i smrde. I verujte mi, žao mi je što sam vam ikada priredila takav prizor.''

Nisam prljava. Da se ne lažemo, vjerovatno perem pazuhe mnogo češće nego vi. Koristim sapun za akne, pa blagi sapun, pa maramice. I tako više puta dnevno. Nekad mi se stanje smiri, nekad ne.

bolest

I znam da vam je teško da mi gledate pazuhe. Znam jer je i meni samoj gadno. Vi možete da se okrenete i odete, ja to moram da gledam svakog dana. Pokušavam da to krijem, jer znam da ljudi ne žele da vide tečni, crveni haos neprijatnog mirisa ispod mojih ruku. Ali to je moj život.

Da li ste svjesni toga da moj vjerenik nikad nije video moje pazuhe? Da majice na bretele za mene ne postoje van kuće zbog osude ljudi? Da se nekada bukvalno udaram i štipam po pazusima da bih olakšala bol?

Hidradenitis suppurativa je hronična kožna bolest. Moje tijelo bukvalno napada samo sebe iznutra. I molim se svakog dana da vi ljudi koji to nemate to shvatite. I ne samo da shvatite, već i da imate malo samilosti prema nama koji od ovoga pate. I želim vam da se nikad, nikad ne suočite sa ovakvim problemom. To ne bih poželjela ni smrtnom neprijatelju - poručuje autorka ovog teksta, Endi Robinson.

 

"I'm really proud of myself. I've been in pain today. I mean obviously considering what I had done. But I've really slowed myself down. Those who know me and my work ethic know I always say " I won't stop till my body does" but with this surgery I've really let myself slow down and relax and take my time with things. I've been asked a few times what it is I've had done and why. I have an auto immune disease called Hidradenitis Suprativa and it can affect the groin, inner thighs, buttocks, belly area, breasts and underarms. I had surgery for only my underarms though I do suffer on my inner thighs as well. The affected skin and underlying tissues was removed and sewn shut. Again I'd like to make it clear that this is NOT contagious. Please feel free to ask me anything. I am not ashamed of my disease. I am a fighter. I am a warrior. I've won my first battle. Now I'll continue to fight the war. " #hswarrior #autoimmunedisease #painistemporary #hidradenitissuppurativa

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ŠTA JE HIDRADENITIS SUPPARTIVA?

U pitanju je hronično oboljenje kože koje počinje stvaranjem dubokih i upaljenih čvorova koji kasnije prelaze u čireve iz kojih se cijedi gnoj. Pacijenti koji od ovoga boluju uglavnom se povlače u sebe i kuću jer bolest prati neugodan izgled i miris kože, prenosi magazin 'Žena'. Kriju svoju bolest pa zbog toga često padaju u depresiju. Javlja se na prevojima kože, najčešće na pazusima, ali može da se javi i na genitalijama, ispod grudi, na zadnjici i sličnim mjestima. Uglavnom se u lakšim slučajevima liječi antibioticima, retinoidima i sličnim stvarima, dok ozbiljniji slučajevi zahtevaju odstranjivanje svih sinusnih kanala i džepova.

 

Late #tbt I was in constant pain 24 hours a day. The wounds caused by the abscesses on my arms left the nerves in that area severely damaged. I couldn’t feel much of anything in that area and could barely lift my arms. Many times I had to stay in the hospital for 3 days or more receiving antibiotics because nothing was working for me. My mom would stay with me and sleep in a chair. My life had become severely limited. I couldn’t do the things that I enjoyed doing anymore. So I stopped going out. I didn’t feel like talking to anyone. I didn’t think anyone could relate or understand. I quickly fell into deep depression that I kept to myself. I didn’t tell others how down and defeated I felt. I faked joy and suffered in silence. Having this disease has been the worst thing that has ever happened to me. It attacked probably one of things I felt semi-confident about, my appearance. I enjoyed dressing beautifully, having my hair done, wearing expensive perfumes etc. Normal things that women do but things I felt I couldn’t do anymore. My illness got to the point that I couldn’t walk much and every part of my body hurt. I decided to reach out to others and tell them what was going on. I couldn’t keep it to myself any longer because it was too visible. My body posture changed and I began to walk hunched over like an old woman. I didn’t even have the strength to get up from bed. The only thing I would wear was sweat pants, a t-shirt and my hair up in a bun. I felt ugly, useless, helpless, unworthy and angry. I felt as if no one could ever accept me or love me due to this condition and what it was doing to me and my life. (I’m thankful that God has given me the strength to continue and that despite the things I go through I have peace and joy that I’ve been blessed with the opportunity of doing things that I wasn’t able to do at that moment in my life. Every day is a challenge but I know I can face each and every obstacle with God on my side) #ashortpieceofmytestimony #blessed #thankful

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